Developing Pediatric Nursing Care for Families of Infants with Heart Disease
Battalova, Kuralay (2019)
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Congenital heart disease (ChD) is a relevant issue for Kazakhstan. Having a child suffering from ChD in the family causes a lot of stress for parents. The study was one of the pilot projects in Kazakhstan to identify the problematic issues of the family with an ill child and their solutions. The purpose of this study is to improve the quality of pediatric nursing via finding out parent’s perceptions and expectations of nursing care during the hospitalization of their infant in pediatric cardiac surgery department. Objectives were: To explore the parent’s perceptions and expectations about nursing care and to develop recommendations for pediatric nurses to support parents during hospitalization in pediatric cardiac surgery department. Qualitative research was applied. The data was collected by using the focus group technique. Thirty parents with children suffering from heart disease were interviewed in six different groups. The data were analyzed by using the inductive content analysis method. Results were grouped in three main categories: the feelings of parents, the perception of nursing care during hospitalization, expectation of parents from nursing care. Conclusion: pediatric nursing care needs to be improved by increasing nurses’ knowledge of characteristic issues of children with ChD and developing nursing autonomy.