Muistipäiväkeskus omaishoitajan silmin

Abstract

Opinnäytetyön tarkoituksena oli selvittää, miten muistipäiväkeskus vastaa ikääntyvien muistisairaiden omaisten palvelutarpeeseen, millaisena omaiset kokevat yhteistyön muistipäiväkeskusten kanssa, millainen on omaishoitajan asema ja osallistumismahdollisuudet sekä millaisia ajatuksia ja toiveita omaisilla on toiminnan kehittämisen suhteen. Opinnäytetyö toteutettiin yhteistyössä Jyväskylän kaupungin vanhus- ja vammaispalvelujen kotihoidon kanssa, joka oli työn toimeksiantaja.

Tutkimus oli luonteeltaan kvantitatiivinen kokonaistutkimus. Se toteutettiin kartoittavana kyselytutkimuksena, pääosin strukturoiduilla monivalintakysymyksillä. Tutkimukseen osallistui yhteensä 30 omaishoitajaa kolmesta eri muistipäiväkeskuksestaJyväskylässä.

The purpose of this study was to determine how the Memory Day Centre met the service needs of the family caregivers and what the experiences of the cooperation with memory day centres were. Furthermore, the study focused on the role of family caregivers and on their opportu nities to participate and on their thoughts and wishes concerning the development of the day centres. The study was carried out in cooperation with the Home Care Department of the City of Jyväskylä, and its results can be used in the planning and development of the functions of day centres. The study was a quantitative study. It was carried out as an exploratory survey that mainly used structured multiple choice questions. The study involved a total of 30 family caregivers from three different memory day centres. According to the survey, almost two-thirds of the family caregivers were spouses receiving least the statutory home care fee. Most of the respondents were satisfied with the services, co-operation and employees of their day centres. According to the survey, the greatest challenge for the caregivers was participation in the planning, implementation, evaluation and development of the activities of the day centre. A third of the respondents felt that they were unable to participate in a service event in any way. The study also showed that the needs of the caregivers concerning the functions of day care were very individual depending on the stage and progress of the memory disease. The most frequent wishes and suggestions for development were related to the transport to the day centre as well as feedback and information about the events of the day and the welfare of the person with memory disease. Based on the results of the study, the most important developmental ideas that rose were the need of timely updates of the care and service plans according to the individual needs of the client and involving the caregiver as an active participant of the service event. There was also a need for peer groups.