Educational needs for parents and caregivers caring for children with PEG tube
Hernandez, Diego (2021)
Hernandez, Diego
2021
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Julkaisun pysyvä osoite on
https://urn.fi/URN:NBN:fi:amk-202201191449
https://urn.fi/URN:NBN:fi:amk-202201191449
Tiivistelmä
Neurologically impaired children often suffer immobility or muscular weakness that
impair their ability to eat and swallow, which in the long run makes them susceptible to
malnutrition. Enteral nutrition is suggested to avoid malnutrition and as preventive
measurement for aspiration. Percutaneous endoscopic gastrostomy (PEG) in specific
allows for long term nourishment and is more often being used for the nutritional management of neurological impaired children. The parents and caregivers of these children
carry the responsibility to care for them taking into account the implications of the PEG
tube.
The aim of this study is to determine what are the key areas of pediatric percutaneous
endoscopic gastrostomy tube care that parents and care givers should be aware of.
A literature review was conducted were data was retrieved from Cinahl Plus and PubMed data bases. Six articles were reviewed and analyzed using an inductive content
analysis approach.
Four educational themes were identified: Availability to professional support, Receiving
practical training, Prevention of complications and Medication administration.
In conclusion the education of parents and caregivers is currently at a suboptimal level.
Reinforcement of professional support available to these families is much needed as
well as a deeper and fuller training and education process that includes feeding and
nutrition assessment, correct hygienic practices for manipulating and cleaning the tube
and stoma, and medication administration by parents and caregivers.
impair their ability to eat and swallow, which in the long run makes them susceptible to
malnutrition. Enteral nutrition is suggested to avoid malnutrition and as preventive
measurement for aspiration. Percutaneous endoscopic gastrostomy (PEG) in specific
allows for long term nourishment and is more often being used for the nutritional management of neurological impaired children. The parents and caregivers of these children
carry the responsibility to care for them taking into account the implications of the PEG
tube.
The aim of this study is to determine what are the key areas of pediatric percutaneous
endoscopic gastrostomy tube care that parents and care givers should be aware of.
A literature review was conducted were data was retrieved from Cinahl Plus and PubMed data bases. Six articles were reviewed and analyzed using an inductive content
analysis approach.
Four educational themes were identified: Availability to professional support, Receiving
practical training, Prevention of complications and Medication administration.
In conclusion the education of parents and caregivers is currently at a suboptimal level.
Reinforcement of professional support available to these families is much needed as
well as a deeper and fuller training and education process that includes feeding and
nutrition assessment, correct hygienic practices for manipulating and cleaning the tube
and stoma, and medication administration by parents and caregivers.