Synthesising Evidence and Identifying Gaps: A Literature Review on Needs and Advance Care Planning in Paediatric Palliative Care for the Development of PALLIAKID Tools
Repo Jamal, Hanna; Kesänen, Jukka (2025)
Metropolia University of Applied Sciences
2025
Julkaisun pysyvä osoite on
https://urn.fi/URN:ISBN:978-952-328-463-0
https://urn.fi/URN:ISBN:978-952-328-463-0
Tiivistelmä
The Comprehensive Paediatric Palliative Care Approach (PALLIAKID) project aims to enhance the wellbeing and quality of life of children and adolescents and young adults (AYAs) requiring palliative and end-of-life care, alongside their family caregivers and healthcare professionals. As part of the project, tools to facilitate shared decision-making in paediatric palliative care (PPC) will be designed and developed.
The purpose of this literature review was to search and analyse literature reviews on patients’, family caregivers’, siblings’, and professionals’ needs in PPC as well as in advance care planning (ACP) in PPC, to synthesize evidence and knowledge gaps for a general foundation to be utilized in the development of the PALLIAKID intervention and tools.
This publication has been made in the Comprehensive Paediatric Palliative Care Approach (PALLIAKID) project. PALLIAKID is funded by the European Union (grant no. 101137169) and supported by Innovate UK. Views and opinions expressed are however those of the authors only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.
The purpose of this literature review was to search and analyse literature reviews on patients’, family caregivers’, siblings’, and professionals’ needs in PPC as well as in advance care planning (ACP) in PPC, to synthesize evidence and knowledge gaps for a general foundation to be utilized in the development of the PALLIAKID intervention and tools.
This publication has been made in the Comprehensive Paediatric Palliative Care Approach (PALLIAKID) project. PALLIAKID is funded by the European Union (grant no. 101137169) and supported by Innovate UK. Views and opinions expressed are however those of the authors only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.